We were devastated to learn that the biopsy result showed that the tumour was medulloblastoma, an aggressive type of cancer rarely seen in babies of his age. Rory was too young to undergo any radiotherapy treatment for the cancer, and so he began an intensive and gruelling chemotherapy regime two weeks after surgery. Rory remained the coolest cucumber throughout all of his treatment, keeping all three of us smiling in the face of extreme adversity.
Our hearts are so very broken to share that Rory's second round of chemotherapy went horribly wrong and he was admitted to PICU on Christmas Day 2019. As a result of the intensity of his chemotherapy treatment, Rory had contracted veno-occlusive disease (VOD) which subsequently led to multiple organ failure. Our little warrior spent a brave two and a half weeks fighting for his life, but passed away peacefully on Saturday 11th January.