Our little hero underwent eight rounds of intense chemotherapy on Kamran’s Ward at the John Radcliffe Hospital in Oxford as well as two major surgeries to remove one of his adrenal glands and a metastasis in his lungs. The treatment was unbelievably tough but somehow Milo managed to be his little smiley self throughout, he learnt to walk during this time and all the hospital staff loved him.
We are in awe of the medical staff at the hospital, who have always done everything they can to help him and support us. His treatment was gruelling but they always said that they would not have put him through all of this if they didn’t think it would make him better.
During the course of the treatment Milo was sadly diagnosed with a rare genetic condition called Li-Fraumeni syndrome and subsequently, Maria was also diagnosed with the same condition. This condition is caused by a rare mutation in the TP53 gene, which is a cancer suppressor. It means that both Milo and Maria are at a high risk of developing subsequent cancers in their life and will need very close monitoring going forward.
Milo’s most recent scan and blood tests were clear so we are hoping with everything we have got that things are going to be ok. However, the end of treatment is also a really hard time for everyone as there is no ‘normal’ to return to.
We would be so happy if you were able to support our fundraising efforts, however small or big your contribution.
We also want to say a huge, huge thank you to all our family and friends who have been so amazingly supportive.